At Long Last, Agency Completes Overhaul of Rules on Use of Humans in Research

The Association of American Universities and the Association of Public and Land-Grant Universities issued a joint statement emphasizing that point. A rule requiring universities to track and retain the personal information of the millions of people who had donated tissue samples would have imposed “enormous” cost and time burdens, slowing overall research, the two associations said. “The most important element of the rule is something it does not contain,” they said.